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NDIS Changes - New No Contact Rules from...

Friday, 4th Sep 26

New NDIS No Contact rules start on 1 October 2026. Find out what is changing, what participants and nominees need to do, and what rights haven't changed, including your right to have a support person involved in conversations with the NDIA.

NDIS Changes - Plan Reassessments

Friday, 4th Sep 26

The rules for asking for an NDIS plan reassessment have changed. If your support needs have changed a lot and your current plan is no longer meeting your needs, you may be able to ask for a plan reassessment. There is now a new process to follow, including completing a form and providing evidence about what has changed.

NDIS Reforms: Where We Are Now

Wednesday, 15th Jul 26

There has been a lot of discussion about proposed changes to the NDIS. We explain what has happened so far, what advocacy organisations are doing, and why there is still time to ensure reforms deliver positive outcomes for people with Down syndrome and their families.

Autumn UP! Club Camp 2026 - Golden Leave...

Friday, 5th Jun 26

UP! Club Autumn Camp 2026 - Golden Leaves Getaway

Make Your End of 2026 Financial Year Tax...

Tuesday, 26th May 26

This End of Financial Year Tax Appeal, your tax donation can help give children with Down syndrome the strongest possible start in life. The toddler years are one of the most important stages of development, but many families are missing out on the support they need due to growing demand and reduced funding.

Government House Reception 2026

Monday, 25th May 26

Board Members 2025

Thursday, 11th Dec 25

Annual General Meeting Nominations 2025

Thursday, 4th Dec 25

Notice of Special General Meeting 2025

Wednesday, 5th Nov 25

Down Syndrome Awareness Month - UP! For ...

Sunday, 19th Oct 25

Each year in October, Down Syndrome NSW hosts UP! For Fun — a community celebration for Down Syndrome Awareness Month. The event brings together people with Down syndrome, their families, and supporters for a day filled with music, laughter, and inclusion at Sydney’s Royal Botanic Garden.

Winter Wonderland Camp 2025

Friday, 22nd Aug 25

Winter Wonders Camp – UP! Club Brings the Wonder! This weekend, UP! Club truly brought the wonder to Winter Wonders Camp! The rainy weather only made things cosier, with hot chocolates, movie nights, indoor challenge games, arts and crafts, and plenty of other recreational activities. But don’t be fooled, the rain didn’t keep us indoors all the time. We braved the elements, got a little muddy, and even scored bullseyes in archery, testing our hand–eye coordination while having a blast.

Celebrating Our Recipe Challenge Winners...

Wednesday, 16th Jul 25