Knowledge Hub
Read our latest news, discover the personal stories of our members with Down syndrome and their families, and source resources that offer offer up to date information and practical tips.
Resources, Fact Sheets and Tool Kits
Welcome to Down Syndrome NSW's comprehensive Knowledge Hub, designed to empower parents, friends, educators, and professionals alike.
Dive into a wealth of fact sheets, toolkits, resources, video recordings and stories meticulously curated to provide invaluable support and insight on Down syndrome. Whether you're seeking guidance, understanding, or practical strategies, our Resource Hub equips you with the knowledge and tools to navigate the journey with confidence and compassion.
Explore, learn, and download resources tailored to enrich lives and foster inclusive communities.
About down syndrome fact sheets
Education Story Books
If you are looking for a way to introduce and educate about Down syndrome and celebrate the acceptance of differences in a day care centre...
ViewDown Syndrome Myths & Facts
In this booklet, we explore a range of myths and facts about Down syndrome that we are often asked or that we often hear. We share some ...
ViewHistory of Down Syndrome
Down syndrome is not a disease, it is a genetic condition. People with Down syndrome are not sufferers, they are people first with diverse...
View
Causes and Incidence of Down Syndrome
The cause of the extra full or partial chromosome is still unknown. Maternal age is the only factor that has been linked to an increased ...
ViewAbout Down Syndrome
Down syndrome occurs at conception. People from all different backgrounds and ages have children with Down syndrome. Our bodies are made ...
ViewBehaviour Tool Kits
Understanding Common Behaviours
Understanding the common behaviours exhibited by children with Down syndrome is essential for providing appropriate support and interventi...
ViewTeacher/Educator Toolkit
The culture and practice of Positive Behaviour Support (PBS) has been increasingly integrated into school in New South Wales in the last f...
ViewParent Toolkit
Positive Behaviour Support (PBS) is an evidence-based approach aimed at cultivating a constructive and inclusive environment by promoting ...
ViewChallenges & Strategies
Children with Down Syndrome may encounter various challenges that impact their behaviour and communication abilities. Understanding these ...
ViewEducation Initiative Fact Sheets
Education Legal Framework
The United Nations Children’s Fund (UNICEF) strongly advocates for inclusive education as a fundamental human right and mandates that qu...
ViewEducation Guide for Parents
All children in Australia have the right to an inclusive education. There are many ideas and philosophies about inclusive education and wh...
ViewSupporting Reading Fact Sheet
ViewSchools Education Program
Practical, personalised support for primary schools, high schools, mainstream classrooms, support units and Schools for Specific Pu...
ViewGetting Ready for School Fact Sheets
Starting School Fact Sheet
Starting school is a momentous occasion for any child, and as parents of a child with Down syndrome, you may have unique questions and c...
ViewStarting High School Fact Sheet
Transitioning to high school is a major milestone for students, marking a period of immense growth, and many changes. For parents and ca...
ViewReady for Kindergarten Fact Sheet
Starting school is a pivotal moment in the life of children and their families. It is an exciting, but often also a nerve-wracking time - ...
ViewNDIS Fact Sheets
Good News Stories
Employment Stories
Resources
These stories showcase the real-life achievements of individuals, the workplaces that embrace inclusion, and the power of meaningful employment to transform lives.
Together with our employment partners, we're building a future where diversity is valued and everyone has the chance to shine.
Ellen & University of Sydney
Josh & The State Theatre
Education Stories
At Down Syndrome NSW, we’re committed to building inclusive school communities where students with Down syndrome are supported to thrive—academically, socially, and emotionally.
Through our Primary and Secondary School Support Program, we work alongside teachers, principals, SLSOs, families, and allied health professionals to build capacity, strengthen collaboration, and keep the student at the centre of every decision.
These stories highlight what’s possible when inclusive education is done well—where strong partnerships, tailored support, and high expectations open doors to meaningful learning and connection for all students.
Hope & St Monica's Richmond
Workshop recordings and videos
Ageing and Health Workshops
NDIS Workshops
Prenatal and New Baby Workshops
Education Workshops
Additional Resources
- Global Down Syndrome Foundation
- Adult Down Syndrome Center (Advocate Medical Group)
- Down Syndrome | Healthdirect
- Down Syndrome Australia Resource Hub
- Association for Children with a Disability
- Carer Gateway - Emotional and Practical Services for Carers
- Disability Gateway
- Welcoming Disability
- Australian Migration with Disability Fact Sheet
- Cancer Screening Resources for people with Down syndrome
- Down Syndrome Regression Disorder Self Assessment Checklist and Diagnostic Workup
Easy Read Recipe Cards
Easy-to-Read Recipe Cards, specially designed for individuals with Down syndrome. Our goal is to make cooking accessible, enjoyable, and empowering for everyone.
- Simple Instructions: Clear, concise steps with minimal text.
- Visual Aids: Plenty of pictures to illustrate each step.
- Large Print: Easy-to-read fonts for better readability.
- Step-by-Step Guidance: Structured to build confidence and independence in the kitchen.
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