Our Programs

Our programs, services and supports help create a brighter future for people with Down syndrome.

Ageing Well Initiative

As individuals with Down syndrome continue to live longer and healthier lives, understanding the unique aspects of ageing becomes increasingly important for families, caregivers, and individuals themselves.

People with Down syndrome experience ageing differently than the general population. While advances in healthcare have significantly improved life expectancy, individuals with Down syndrome may face specific challenges related to:

  • Health Conditions: Such as early-onset Alzheimer's disease, dementia, sensory impairments, and musculoskeletal issues.

  • Social and Emotional Well-being: Changes in social networks, transitioning from parental care to independent living or alternative care arrangements.

  • Financial and Legal Considerations: Including guardianship, financial planning, and accessing appropriate supports and services.

At Down Syndrome NSW, we are dedicated to providing the support and resources needed to ensure a fulfilling and healthy life for older adults with Down syndrome.


Ageing Workshops

Down Syndrome NSW is committed to supporting individuals with Down syndrome and their families at every stage of life. We offer resources, programs, and services designed to address the unique needs of our older members.

Ageing and Introduction to Dementia with Julie Louden and Miriam Philomena

23 July 2024 at 11:00am 

Parramatta NSW

End of Life Directives with Dr. Brian Chicoine

14 August 2024 at 9:00am 


Caring for your Teeth, Good for Your Health with Antonia Smith

28 August 2024 at 10:00am 


Special Disability Trusts with Duncan Legal

10 September 2024 at 12:00pm


Estate Planning for Parents of a Child with Disability

Down Syndrome NSW have partnered with NSW Trustee and Guardian to put together a very special package exclusively for our valued members at Down Syndrome NSW.
We have heard your requests for this very important information, and we are very grateful for all of the work that has gone into this exclusive web platform for member of Down Syndrome NSW.
Based on our meetings, the amazing team in the legal and communications department at the NSW Trustee and Guardian have put together a key list of information and considerations when commencing this journey, specially crafted for Down Syndrome NSW that is also relevant to any other parents and guardians of those living with disability. 

With this free to access information, comes an email request system through which Down Syndrome NSW members will be prioritised should you wish to engage the services of the Wills and Estate Planning Team at the NSW Trustee and Guardian, which is a fee for service model priced reasonably comparative to other legal options. As always, the choice and control rests with our members, Down Syndrome NSW is providing the information to assist.

The information on their webpage is free to access for Down Syndrome NSW Members, with the option to engage the expert legal service should members wish.

External Resources



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