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This is a page dedicated to all family members of persons with Down syndrome. You will find a wealth of information here for most family members. This page is updated with more information all the time, so feel free to check back here on a regular basis.

If you are a family member and you have a question or enquiry that is not answered here, please contact our Information, Training and Support team.


New Babies

Congratulations on the birth of your new baby! Amidst the joy of your baby's arrival, a new diagnosis can create stress; not knowing what to expect for your baby or for yourselves as new parents; what to tell family and siblings; what the future might look like.




Every year, all over the world, about one baby out of every 100 born will have Down syndrome. In terms of disability that makes it pretty common. If you have a brother or sister with Down syndrome you might not be as special as you thought!