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Welcome to our community

Down Syndrome NSW supports people with Down syndrome by providing information, resources and assistance for them and their parents, families and carers.  We also provide training and advocacy to professionals who may be caring for or supporting our members.  We aim to provide support throughout all life stage - prenatal, new babies, early years, school years, adulthood and retirement - to help fulfill our vision for everyone with Down syndrome to achieve their full potential.

Expecting a Baby

New Families & Early Years


Life Stages


View our video
Produced with thanks by Mounties Group

Up Up Away youtube


Family Support Group

find us on facebook

Our closed Facebook group is for NSW parents and family members of children with Down syndrome, or those who are expecting a baby with Down syndrome.

Our group is mediated by Down Syndrome NSW members with lived experience and was created to encourage peer support, information sharing and to empower families to support each other.  Please feel free to share your fears and joys, highs and lows, current information and news.

The group is open to members only.  It's easy to join and it's FREE!