The Information and Support Team would like to invite you to our Annual Baby Day.

It's a great opportunity to meet other parents with babies, up to 4 years old, to share stories and find out ways in which we can support you.

The day's acitivities will include:

  • Introductory Session - Early Intervention
  • Introductory Session - Keyword Signing
  • Introductory Session - It Takes Two to Talk
  • A presentation on oral health for parents of children with Down syndrome by Dr Diane Tay

This is an open invitation to everyone with babies.  We appreciate if you live outisde Sydney metro area it may be difficult to travel but we'd love to see you.

Please note, babies and toddlers are welcome with their parents however there is no babysitting available for older siblings.

Date: Sat 11th August 2018

Time: 10am - 2pm (A light lunch and afternoon tea will be provided)  Please advise of any special dietary needs.

Venue: Burwood Library Community Hub, 2 Condor St Burwood NSW

Cost: FREE event

Register online

For more information P: 9841 4444 and ask for Lakshmi or Marissa or E: This email address is being protected from spambots. You need JavaScript enabled to view it.



We've got some great news!  After our free membership trial in 2017-18, we've increased our membership by nearly 300%.

So, we have decided to waive the membership fee again for everyone who wants to be part of the Down Syndrome NSW community. 

Though membership is free again for 2018/19, we appreciate your support in many other ways.  Visit SUPPORT US to choose your method of support.

Please read the details below carefully and choose which one applies to you.


If you are a current member, we will automatically renew your membership however we'd like to you go online and update your personal details. Down Syndrome NSW Membership


If you are a becoming a member for the first time, or rejoining, please go online to register and provide your personal details:Down Syndrome NSW Membership


If you are a current member and DO NOT wish to renew your membership, you can OPT OUT by contacting This email address is being protected from spambots. You need JavaScript enabled to view it. with your membership name.  

Your membership DOES NOT INCLUDE a subscription to Voice magazine, which is $30 per annum.  You can choose to subscribe when you update your membership details online.

In the future, your membership will automatically renew each year in June.  However you can OPT OUT by email at anytime.

Here's a reminder of just some of the activities, connections and support we provide for our members and the greater Down syndrome community in NSW:

As one of the state's peak organsations representing people with disability, Down Syndrome NSW has been asked by the Australian Government to pass on this information to you.

My Health Record outline RGB

This year, all Australian's will get a My Health Record for all those with a Medicare or Veteran Affairs Card, unless they choose not to.

My Health Record is an individual's safe and secure digital health information, easily accessible by doctors, specialists and hospitals.

Australian Digital Health Agency CEO Tim Kelsey said the expansion of My Health Record nationally this year will deliver a system that provides universal functionality, clear and concise content and, critically, a safe and secure clinical health service for all Australians.

“My Health Record can reduce the risk of medical misadventures by providing treating clinicians with up-to-date information. The benefits of digital health for patients are significant and compelling. Digital health can improve and help save lives,” Mr Kelsey said.

“Strict privacy control, set by an individual, is a central feature of My Health Record. Each person can control the information in his or her My Health Record, and the healthcare provider organisations that can have access,” said Mr Kelsey.

Read more

During the opt out period (16 July – 15 October 2018) individuals who do not want a record will be able to opt out by visiting the My Health Record website or by calling 1800 723 471 for phone based assistance. Records will be created for all other Australians by the end of 2018.

Down Syndrome NSW is looking for people with Down syndrome to become members of its advisory network.

The Advisory Network is a group of people who will help Down Syndrome NSW understand what is important to people with Down syndrome.

Each member will get a support person if you need one to help you understand the issues and talk about your thoughts.

DSNSWAN banner cropped

Are you interested in becoming a member?

Are you aged 18 and over?

Are you interested in having a say on things that are important to people with Down syndrome?

Do you want to help other people with Down syndrome?

If you are interested you will have to fill in a nomination form. You can ask someone to help you with this, such as family or friends or staff at Down Syndrome NSW.

You can call or email if you have any questions or need help to do your nomination.

P: 02) 9841 4444
E: This email address is being protected from spambots. You need JavaScript enabled to view it.

Download application form