Happy World Down Syndrome Day!  Just a reminder that we have "open office" all this week so please call in and visit us.  We'd love to see you.  We're open 9am - 5pm, Mon-Thurs.

One of the other events we have organised for World Down Syndrome Day and the resulting week, is a walk down memory lane.  Find out how and why it all began with Down Syndrome NSW.

Our first exceprt is reminiscence from Di Cook, one of the original 1980 founding members.

"My daughter Samira was born almost 12 years ago (as spoken in 1990).  At that time, parents of children who had Down syndrome could join a group called DIG (Down's Interest Group).  Many parents felt we needed a stronger group that could better represent the interests of children with Down syndrome and their families."

"The very first meeting was held on 25th June 1980."

Read more

Better Start workshop image

Down Syndrome NSW invites you to our Free Early Days Workshop. Specifically for parents of babies and toddlers with Down syndrome, the workshop will discuss:

  • The juggling act

  • Dealing with professionals

  • Self-care check-in

  • Developing a vision

  • A team approach

  • Early intervention

  • Planning, goal setting and funding

  • Impact and experiences

  • What's next?

It's a great opportunity for new parents to meet other families and learn valuable information about services that are available.  It's a relaxed, informal atmosphere to allow for sharing of lived experiences.

Dates: Sat 24th March 2018
Time: 10am - 4pm.  Morning tea and a light lunch is provided
Venue: John Edmondson VC Memorial Club, 185 George St Liverpool

This is a FREE workshop.  No cost to attend.
Bookings essential:  Register online: 
For queries contact: 02 9841 4444 or email This email address is being protected from spambots. You need JavaScript enabled to view it.

Download flyer


Back by popular demand!  Down Syndrome NSW is once again organising our popular Family Weekend Away.  This year we are returning to Dubbo, to check out the zoo and take advantage of all the fun activities offered by the Dubbo Discovery Park.

We are currently looking for Expression of Interest only.  Details as follows:

Date: Friday 18th - Sunday 20th May

Approx times: Friday night - Sunday afternoon

Venue/accom: Discovery Park Dubbo

Cost: Approx $570 - $610 per family (2 adults x 2 children)

To show interest in attending, please email: This email address is being protected from spambots. You need JavaScript enabled to view it. or contact Lakshmi or Marissa on 02) 9841 4444.

REGISTER HERE with your EOI by Thursday 29th March.

Download flyer for more information.

Sarah and Ava EdCon18 

EDCON 2018 

This is an essential conference for any educator working with a student with Down syndrome. The conference aims to equip attendees with a toolkit of practical strategies, information and resources to best support students in various educational contexts.

The topics addressed are also relevant for teachers working with students with developmental delay, intellectual disability and other chromosomal disorders. REGISTER NOW to engage with some of Australia’s most experienced and informative speakers in the field. Keynote speakers will share evidence based research and practical classroom applications to improve student outcomes.

Please note: this is a NESA-Accredited event, providing 10 hours of disability learning over 2 days.


Date: Thursday 22nd March - Friday 23rd March 2018
Time: Thursday 22nd, 8:15am - 4:00pm. Friday 23rd, 8:30am - 4:00pm
Venue: Parramatta Park Royal, 30 Philip St Parramatta NSW 2150
Keynote speaker: Dr Rhonda Faragher, Snr Lecturer in Inclusive & Special Education, University of Queensland. 
Cost: $495pp. Includes morning tea, lunch and afternoon tea both days.

Download program  Download flyer  Download Speaker Profiles

Dont' miss out!  REGISTER NOW, by Friday 16th March to secure your attendance.

What people said about last year's conference:

‘Excellent conference full of strategies, information and technologies which are practical and useful’
‘Helpful, not only for teaching my student with Down syndrome, but for all students in my class’