DS NSW is an independent, not-for-profit organisation that was established in 1980 by parents of children with Down syndrome.  Today the DS NSW board and staff is a team of parents and professionals who share lived experiences, skills and abilities to provide the best opportunities for our members to achieve their full potential.

We provide

  • A dedicated information and referral service for families and professionals
  • Peer to peer support to families at all life stages
  • A library resource centre of information and resources about Down syndrome in Australia
  • Workshops and community events for members
  • Professional development and training for education and health professionals
  • Representation for the interests and needs of people with Down syndrome at state and federal levels
  • A voice for people with Down syndrome and their families in public discourse and policy development
  • Social networking and self-advocacy opportunities for adults with Down syndrome.

DS NSW is a member of Down Syndrome Australia, a federation of eight State and Territory associations which represents the interests of our constituency at a national level.